about COnnective Strength

Connective Strength Goals

At Connective Strength, our primary goal is to empower and support local patients with Ehlers-Danlos Syndrome (EDS) through a comprehensive approach. We are committed to organizing twenty-four to thirty-six group meetings annually, fostering a solid support network. Additionally, we focus on creating and distributing informative, educational handouts to enhance understanding and management of EDS. Our initiatives include offering in-person education classes for healthcare providers, covering various topics pertinent to EDS care. Furthering our outreach, we host awareness events open to patients, healthcare providers, and the general public, promoting broader understanding and community engagement. Another critical aspect of our mission is establishing robust partnerships with local healthcare providers through which we distribute Connective Strength business cards, ensuring essential information is readily accessible to those who need it most.

Title Sponsor

As the title sponsor of Connective Strength, Hands for Living in Lynnwood and Redmond excels in providing specialized care for those with EDS. Their expert team is dedicated to enhancing life quality for EDS individuals through innovative therapy and support, making a significant impact in the community.

Serving Ehlers-Danlos Patients since 2019

Connective Strength provides education, awareness, and advocacy to local Ehlers-Danlos Syndrome patients, providers, and families.

 

 

We are a registered 501(c)3 organization.

Board of Directors

Zoë Jorna-Jackson

Board President
Patient Advocate with a degree in Social & Sustainable Business Management.

David Stansel-Garner

Board Secretary & Treasurer
Patient Advocate, marketing & events expert, local business owner.

Sarah Tompkins

Board Member
Rare Patient Advocate, board member NW Rare Disease Coalition

JoAnn Keller OTD, OTR/L, CHT

Board Member
Provider Advocate & Certified Hand Therapist https://handsforliving.com

Matthew C. Oseto, MD, MA, FAAOS, FAENS

Board Member
Provider Advocate & Orthopedic Specialist

Advisory Board